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Help us Find a Cure for
Angelman Syndrome

Welcome to the Foundation for Angelman Syndrome Therapeutics UK.
We have one goal: to cure Angelman Syndrome.

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Global Angelman Syndrome Registry

What is Angelman Syndrome?

Angelman syndrome is a rare genetic disorder that affects the nervous system, leading to severe developmental delays, speech impairments, and balance issues. Individuals with Angelman syndrome often exhibit a happy, excitable demeanour and enjoy social interactions, but they may also face challenges with movement, coordination, and learning. This condition, typically identified in early childhood, is caused by changes on chromosome 15 and requires lifelong care and support. As we work towards a brighter future for those affected, your support can make a meaningful difference.
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Drug Development Pipline

It’s our job to push forward all promising Angelman syndrome (AS) programs, and to ensure that the community has a birds-eye view of the entire landscape.

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Meet Bella...

Our journey pretty much started when Bella was born – she had a really tough birth, time in intensive care and the hospital was a second home really with many specialists and investigations which then led to genetic specialist involvement. The hospital is still a second home and we are really grateful for Bella’s team of healthcare specialists who make sure she’s getting the best help and every opportunity…
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Has your loved one been newly diagnosed with Angelman Syndrome?

If your loved one has recently been diagnosed with Angelman Syndrome, you’re not alone. It can feel overwhelming, confusing, and uncertain, but there is support available. On this page, you’ll find clear information about Angelman Syndrome, what it means, and what to expect. You can also reach out to our team directly for guidance, support, or simply someone to talk to.
Learn About Angelman Syndrome

Need support or advice?

We’re here for you, just reach out.
Your information is kept private and will only be used to respond to your enquiry.

The Latest at FAST UK

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Alton Towers IAD Weekend 2026 – Celebrating 13 Years!

The 2026 Alton Towers event for International Angelman Day marked an incredible 13 years of bringing families together for a weekend of fun, connection, and celebration!

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International Angelman Day @ Alton Towers

21/02/2023

February 15th 2023, marks the 10 year anniversary of International Angelman Day, It is also the tenth year that an Angelman group, created by an Angelman mum, Linda Holmes, took place at their usual venue Alton Towers.

Global Spotlight: Heather Brady

09/12/2024

When we received Cecilia’s diagnosis in 2020 when she was 2 years old, it felt like an overwhelming blow, and when we were told there was no cure, we just could not accept this and started looking straight away at what we could do for our beautiful girl.

Global Angelman Syndrome Registry

03/03/2025 No Comments

Your family’s experience can help build understanding of Angelman syndrome and support research towards treatments and a cure.

Parent Blog: Carers Week 2026 – Please, give us a smile…by Sarah Washbrook

04/06/2026 No Comments

Please, give us a smile 

I’m Mum to 6 year old Ivor, who lives with Angelman syndrome. This is a rare neurogenetic disorder affecting about 1 in 15,000 – about 500,000 worldwide. 

People living with Angelman syndrome are significantly intellectually disabled, have balance and coordination issues, motor impairments and many have debilitating seizures. 

Some will never walk. Most will never talk. 

Life changing. 

I’d like you to step into my life as a parent carer, just for one day.

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Scientific Updates

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FAST Global

This website is operated by FAST UK, an independent entity organised and existing under the laws of (England and Wales).  While FAST UK uses the branding of the Foundation for Angelman Syndrome Therapeutics, FAST UK is a separate and distinct entity, operating under its own governance.

At FAST UK, we’re dedicated to keeping our community informed about advancements in Angelman syndrome treatments. We’ve provided a link to the global FAST site, where you can explore an up to date overview of the drug development pipeline. This resource highlights the progress of various programs, some of which are supported by FAST and others disclosed by external organisations.

Click below to gain insight into the promising developments bringing us closer to effective treatments and, ultimately, a cure.

FAST Global
Prof Art Beaudet

There are many disorders that will not be cured or treated in our lifetime, but Angelman Syndrome will not be one of them.