Help us Find a Cure for
Angelman Syndrome
Welcome to the Foundation for Angelman Syndrome Therapeutics UK.
We have one goal: to cure Angelman Syndrome.
Are you a caregiver for someone with Angelman syndrome?
Your experiences are invaluable, and we want to hear from you.
What is Angelman Syndrome?
Angelman syndrome is a rare genetic disorder that affects the nervous system, leading to severe developmental delays, speech impairments, and balance issues. Individuals with Angelman syndrome often exhibit a happy, excitable demeanour and enjoy social interactions, but they may also face challenges with movement, coordination, and learning. This condition, typically identified in early childhood, is caused by changes on chromosome 15 and requires lifelong care and support. As we work towards a brighter future for those affected, your support can make a meaningful difference.
Meet Bella...
The Latest at FAST UK
Alton Towers IAD Weekend 2025 – Celebrating 13 Years!
The 2026 Alton Towers event for International Angelman Day marked an incredible 13 years of bringing families together for a weekend of fun, connection, and celebration!
Reflections on FAST Science Summit & Gala 2021 by Irina Karaseva
Flying back home from Austin, where FAST Global Science Summit dedicated to Angelman Syndrome took place in December, I was thinking of how amazing it would be to organise something of a similar scale in the UK and every other country for that matter.
Angelman Syndrome Caregiver Survey
Are you a caregiver for someone with Angelman syndrome? Your experiences are invaluable, and we want to hear from you.
International Angelman Day @ Alton Towers
February 15th 2023, marks the 10 year anniversary of International Angelman Day, It is also the tenth year that an Angelman group, created by an Angelman mum, Linda Holmes, took place at their usual venue Alton Towers.
Parent Blog: Our son, Hudson, is our real life Angel! …by Charlene Cooper
Our son, Hudson, is our real life Angel! Our blue eyed boy was born on 1st December 2020, eager to meet us as he came 3 weeks early. Hudson’s big sisters, Amelia and Madison were delighted with their new role as…
Reflections on FAST Science Summit & Gala 2021 by Irina Karaseva
Flying back home from Austin, where FAST Global Science Summit dedicated to Angelman Syndrome took place in December, I was thinking of how amazing it would be to organise something of a similar scale in the UK and every other country for that matter.
Supporting FAST UK and raising awareness of Angelman Syndrome – our journey so far… by Sarah Washbrook
So where did it all begin? I knew very early on that something was unique about Ivor. I waved my hands, but people said I was fussing; he’s just a boy. I suppose this is when the grieving started for me, the fear, the worries.
Fundraising News
Alton Towers IAD Weekend 2025 – Celebrating 12 Years!
International Angelman Day: February 15
Art for Angelman 2024: Our Biggest Fundraiser of the Year
Alton Towers IAD Weekend 2025 – Celebrating 12 Years!
International Angelman Day: February 15
Art for Angelman 2024: Our Biggest Fundraiser of the Year
Scientific Updates
FAST Global Search & Rescue Initiative Joins the Global Angelman Syndrome Registry
Phase 3 Aspire trial of gene therapy GTX-102 doses 1st patient
FAST Global Search & Rescue Initiative Joins the Global Angelman Syndrome Registry
Phase 3 Aspire trial of gene therapy GTX-102 doses 1st patient
FAST Global
This website is operated by FAST UK, an independent entity organised and existing under the laws of (England and Wales). While FAST UK uses the branding of the Foundation for Angelman Syndrome Therapeutics, FAST UK is a separate and distinct entity, operating under its own governance.
At FAST UK, we’re dedicated to keeping our community informed about advancements in Angelman syndrome treatments. We’ve provided a link to the global FAST site, where you can explore an up to date overview of the drug development pipeline. This resource highlights the progress of various programs, some of which are supported by FAST and others disclosed by external organisations.
Click below to gain insight into the promising developments bringing us closer to effective treatments and, ultimately, a cure.
Prof Art Beaudet
There are many disorders that will not be cured or treated in our lifetime, but Angelman Syndrome will not be one of them.